A couple of mornings ago I woke up in a cold sweat at 5am. I'd just had a dream that I'd lost Cameron outside the gates at Disneyland and was powerless to find him. While for many people Disneyland is the Happiest Place on Earth, for me it is (quite literally) the stuff of nightmares. Just thinking about Cameron in a place that big and that crowded makes me sick to my stomach.
I think the dream probably popped up because I'd just had a conversation with my friend Emily about a scary incident in the church parking lot a few weeks before. Cam had darted away from me in the church and into the parking lot, straight into the path of Emily's backing SUV. She looked carefully before she pulled out and even saw Cam paused momentarily on the sidewalk. Suddenly he made a beeline for our van, which took him right behind her car.
In the meanwhile, I was struggling through the crowed lobby trying to reach him and only cleared the doors in time to see him just feet behind her bumper. I screamed his name loud enough for even the monks to hear (those of you who live here will understand that). Emily heard me and slammed on her brakes.
I was terrified.
She was terrified.
Cam was completely oblivious.
He acted like he didn't even hear me. (His ears probably heard me, but his brain was so focused elsewhere the message didn't get delivered.) He just continued trotting to our minivan. His face was completely composed and his eyes just stared blankly at the van door, waiting for me to open it.
I really think I lost a year or two of my life that morning.
As I lay in bed, waiting for my heart to stop pounding after the nightmare, I spent a lot of time thinking about Cam. We've been so encouraged by the progress we've seen him make. He is finally beginning to be able to tell us what's on his mind. He's able to sit still in primary for greater amounts of time. Some days Cam can tell us what he had for lunch or about something he did at school. We've also seen progress in his receptive language (ability to process and understand what he hears).
I guess what I realized that morning is that even with all the improvements, the Autism is still there.
Each improvement may even bring a new Autism-related challenge.
His improvement in understanding language, in the case of the parking lot incident, actually PUT him in danger.
A few months ago, he probably would have stayed by my side in the hallway. Instead, he understood we were leaving and that triggered the 'going home' routine in his head. He knew that meant getting his coat on, going outside and getting into the car.
Kids with Autism often have a difficult time deviating from a routine. He was locked into the routine he knew, almost like tunnel vision.
Kids with Autism are also often unaware of danger. Any four year old running through a parking lot would have stopped if they'd heard their mother scream like I did. At the very least, they would have turned their head a little, noticed the car, or would have reflected some kind of emotion after something like that. Not Cam. He was COMPLETELY unaware.
These new realizations were also driven home this week as I peeked in on sharing time. This part of primary has been hard for Cam before. We don't expect him to be able to understand what is happening there yet, but we're working on helping him sit still so he doesn't distract others. We'd been encouraged as we'd seen how far he'd come in these efforts. But, when I looked in on him Sunday, he was standing up in his row with blank eyes and a bobbing head, making random noises. Not only was he completely checked out, he was starting to vocally 'stim' which is something he does only when things are really bad.
I'd love to think that this journey we're helping Cam along is all straight road, without any dips or curves. That we'll be able to measure his Autism-related progress like we measure his height--perhaps gradual, but all up. Now I'm wondering if it is more like a maze. You never really know where you are or what is around the next corner.
Even given some of these disheartening realizations, we have so much to be grateful for. Cameron is very high functioning and is delightful to be around. He is often happy and affectionate, which is not commonly a part of Autism. This makes things much easier.
As we have fasted and prayed to know how to help him, we feel the Lord's guidance in so many areas. We see His hand in Cameron's diagnosis; in continuing guidance of what treatments will be of benefit to him and which treatments to avoid; and in some areas where we simply have to acknowledge the tender mercies of the Lord in helping Cameron where his parents could not.

